Showing posts with label medical miracles. Show all posts
Showing posts with label medical miracles. Show all posts

Friday, November 17, 2017

Health Update Month

Most of November, at least weekly, I'm being checked, drained, infused, walked, PFT'd and otherwise followed up on treatment for RA mostly to see whether what's been done is working. So far, so good.

This series of tests, evaluations, infusions, medications and visits with the doctor(s) should wind up by December 1, and the results so far indicate that I may -- stress 'may' -- be going into "remission with medication". In other words I will have to continue taking pretty high doses of immunosuppressants but that most symptoms of RA will be in abeyance for the duration.

The surprise yesterday was with my consulting pulmonologist and the tests leading up to seeing her.  She wanted a six minute walk and a pulmonary function test to compare with previous tests I'd had in April and July of this year. I did the walk with very little strain at all. The only real issue was high-ish blood pressure, but the technician said it was actually "not that bad."

I dreaded the PFT (pulmonary function test). I call it "torture." I'm sure it's nothing compared to what the various targeted prisoners in our various foreign and domestic gulags face on a daily basis, not even close, but it's definitely uncomfortable for someone with pre-existing breathing difficulty.

So there I am in The Booth of Doom chatting with the technician who says she's been doing this for 40 years and yadda and yadda, and she starts the tests, and... gee, it seems much easier on my end. So we chat some more and she points out that the test equipment as well as the Booth itself are somewhat different between hospitals. Yesterday I was at UNM Main Hospital in Albuquerque whereas the other tests were done at Presbyterian's Kaseman Hospital.

We go through the rest of the series of breathing tests and I tell her this time it seemed to go much easier for me. She prints out the results that I'm to hand-carry to the consulting physician, and as it happens, I have the previous results with me so I compared and contrasted over lunch. No, I don't know how to read the print out medically, but I could compare numbers line by line, and it was surprising to see that some of the lowest numbers in the past were now significantly higher.

When I saw the doctor that afternoon, she said that as far as she could tell, my results were mostly either within normal range or nearly so. Which was a great improvement over previous tests. The only worrisome number was lung capacity which is still low -- but not as low -- and she said that was due to scarring that had already taken place from RA, scarring that couldn't be reversed. However, it wasn't getting worse, and there was a slight improvement in capacity over time, which she said was due to medication preventing further progress of the lung damage.

I told her I no longer use Albuterol inhaler, don't use Spiriva, don't use oxygen, and haven't done pulmonary rehab. She said the improvement is therefore due to the effectiveness of the medications I'm taking  and that it may be possible to reduce the high doses I've been on slowly over time, but that I will have to be monitored fairly often to make sure there's no relapse.

Finally, she asked if I'd been diagnosed with COPD. I said yes, before the RA diagnosis. She said, "If you have COPD, it's very mild. In fact, you may not have it at all."

Oh. My.

I told her I felt like the treatments since May have been nothing short of miraculous.

I have another Rituxan infusion (the 4th) next week, then to the eye doctor and my primary rheumatologist the following week. Whew.

We'll see.

Meanwhile, busy-busy-busy with more and more daily activities including boosting Ms Ché's performing and academic career. Here she is with a couple of other indigenous women performing "Stop! In the name of Love" at the  Indigenous Liberal Studies talent show the other day.

Stop! In the name of Love
Yes, I know, the lighting is bad, it's fuzzy as heck, and they're all wearing one dress. Of course. But oh my such hooting and hollering from the audience. Fun!

And before you wonder how 'indigenous' the choice of music was, all three performers are indigenous women, and therefore the performance is by definition indigenous. At this particular art school, the question gets raised periodically -- "What is Indigenous Art?" The answer was provided long by former instructor Fritz Scholder

Tuesday, January 14, 2014

The Silk Pillow Effect


Silk Pillow

I've been out for the last few days with an episode of sciatica, a recurring problem I've had for the last ten years or so. This is the first time it's happened since we've lived full time in New Mexico.

There was a precursor episode about ten days ago, when I knew a sciatic attack was underway, but the symptoms were mild enough that I wasn't particularly bothered. I could walk, sit, stand, and the pain was relatively mild, focused on the left side of my lower back. It felt as if a vertebral disc was protruding and pressing on the nerves that ran down my left leg. I've had this before, and it's annoying. Sometimes the leg goes completely numb, but more often, my left foot is numb which can make it difficult to walk without lurching and limping about. Usually the pain is mild and can be controlled with Advil or the like. Initially, too, I applied Holy Dirt from El Santuario de Chimayó, which caused immediate and lasting pain relief. Milagro! I can't explain it, but that's what happened. I knew that there was still a sciatic condition, for I could feel the disc protrusion, but the nerve pain was nearly completely gone, and I was quite in wonder at the miracle of it all. I think I then became somewhat complacent. Mistake.

On Friday I woke up in real agony, with intense pain in my left hip, so intense that I was unable to sit or stand or walk for more than a moment or two without experiencing excruciating pain, and so,  for all intents and purposes, I was confined to bed. This was the worst episode I'd had for close to ten years, and the evocation of what I went through back then was not pleasant. Something had happened during the night to force the disc out further and press even more severely on the nerves involved thus producing a constant intense pain. Movement of any kind was difficult. Sleep was impossible.

I came very close to calling Emergency Services, even though it would mean transport by ambulance over 40 miles to Albuquerque's Presbyterian Hospital emergency facilities. This was not an idea I enjoyed at all. Bad as I felt, the thought of an extended trip in an ambulance to wait in an emergency room for essentially little or no treatment and then a ride back home in the car (would that even be physically possible?) was daunting.

I would just have to tough it out somehow.

Sciatica is the set of symptoms signifying a nerve condition in the lower back and hip region often affecting one leg as well (rarely both). It can cause extreme pain and discomfort, numbness in leg and foot, and difficulty walking, sitting or standing normally. As it is right now, for example, although the pain is mostly gone, I can only walk with a very pronounced limp and may have to start using a cane. The cause, in my case, is a herniated and protruding spinal disc that presses on the sciatic nerve that runs down my left leg.

Yes, when it is bad, it hurts like almost nothing you can imagine. There is no escape from the throbbing, shooting pain that lies so deep in the tissue of the leg and hips that it seems to come from some mythic place you didn't know existed. In my case, it was impossible to sit or stand or walk for more than a moment or two, and even lying down could be fiercely painful. Adjusting positions could become an agonizing trial. 

As I say, I've had the condition for ten years or more, the first episode occurring when I was getting out of the car one day and twisted my back just so, causing the spinal disc to protrude. I knew something had happened, because I could feel the protrusion before the pain started. Once the pain started, I couldn't move without extreme pain, and had to be transported by ambulance to the ER where I was promptly seen and diagnosed, but apart from a cortisone injection (which really didn't help much) and some meds, there was nothing, they said, they could do. It would have to heal itself, which they said would happen in a few weeks -- or months.

True enough. The pain gradually dissipated to almost nothing, though leg and foot numbness was constant and relatively severe. In about three months, I felt the disc pop back into place, and the pain -- and most of the numbness I'd been experiencing -- promptly went away. But not completely. In fact, ever since, I've felt consistent numbness in my left leg and foot, sometimes mild, sometimes relatively severe, and I have had modest difficulty walking and have a slight limp favoring my left side. It's been very difficult for me to bend down to pick something off the floor, and there have been other issues, especially around driving long distances (which I used to do quite a lot). For all intents and purposes, sciatica is a chronic condition for me, sometimes debilitating, typically merely annoying. One learns to cope.

This was the first time a severe episode had happened in several years, and it was the first time I had experienced it since moving permanently to New Mexico. Now that I have Medicare Advantage through Presbyterian (one of the major health care providers in New Mexico) at least I have access to medical care if I need it. The problem is that Presbyterian's services are located in Albuquerque, and we live out in the country 40 or more miles away from the closest Presbyterian clinic or hospital. There are alternative services closer to us, but they tend to keep banker's hours and are not equipped for emergencies. If I were to use these out of network clinics, the financial consequences would be essentially the same as if I had no health insurance at all. One thinks long and hard before doing so. On the other hand, when we actually did have no health insurance, we had to use an urgent care clinic for a badly infected wound, and the cost was surprisingly modest, the service competent and quick. The really major expense was for antibiotic medications, not for clinic services.

In this case, since I knew what had happened -- oh yes -- and knew from previous experience that except for certain prescriptions (and possibly a cortisone injection), there was nothing that could be done about it except to grin and bear it and let it heal on its own, I decided to forgo medical treatment altogether. I had enough meds from the most recent episode, a nice cozy bed, and I'm always more comfortable at home than in the noisy, frantic atmosphere of a hospital, especially the emergency room, in any case.

I came to suspect my cozy bed itself was part of the problem. It has one of those memory foam mattresses, which at first was extremely comfortable but over time -- we've had it well less than a year -- began to develop rather more permanent depressions where we sleep than returning to shape as advertised. We have another bed with a more traditional innerspring mattress in the south bedroom, but that room isn't heated during the winter due to our energy conservation routine (we close off unused rooms during the winter, so as to heat the least amount of floor space we can. Still heating costs are quite high as energy is relatively expensive in this part of the country -- about twice the rates for gas and electricity we were paying in California, for example). There was no way we could exchange the mattresses between rooms in my condition. So, we had to figure out if there was something we could do to modify the foam mattress enough to support my hip rather than let it sink in.

This is where the Silk Pillow came into play. The pillow is usually on Old Joe's chair, the one item of furniture we retrieved from Joe's house next door in California after he passed away. Frank and Rosemary, who had been taking care of him, were clearing out the place preparing it for sale some weeks after he died. They thought the old chair was worthless and were grateful that we wanted to take it for the memory of him. It's a very '40's style rounded upholstered chair, beige, very much like Joe himself, and we treasure it. For a time, it was my main seat in the living room, but I traded it out for another old leather covered chair we have some time ago. Old Joe's chair became the "sickie-chair." When we are feeling under the weather or one of the cats needed care, we'd use Old Joe's chair because it was snug and comfortable, and we all seemed to heal better and faster there. The Silk Pillow was on top of the seat cushion as extra padding, just enough, it seemed, to make the chair quite soft and supple. We decided the Silk Pillow was needed on the bed to support my left hip, and that's where it went.

Relief began almost immediately, though the pain continued to be quite severe nevertheless. From Friday to Sunday, there was no let up in the pain, though I could tell it wasn't getting worse -- a good sign -- and I was gradually able to move somewhat more freely. By Monday, I was able to get up and get around, not exactly freely, but at least I could become physically more active and walk -- or hobble -- to the bathroom, that sort of necessary thing. I had a very pronounced limp, though, and nearly fell over a number of times. It was as if my left leg had shortened several inches. Sitting was still a problem, but as the day wore on, even that became less and less troublesome.

Finally, by the end of the day yesterday, I could say with fair confidence that the pain was gone, though numbness continued in my leg and I still have a significant limp. I can still feel the disc protruding, though not as much it did during the worst of the episode. Pressure on the nerve is mostly relieved, whew.

In the course of this episode of sciatica, I've used several tactics to control and relieve pain, some of them remarkably effective, if only for a short while. The Holy Dirt was the first thing I tried, and it worked -- miraculously -- until Friday when the pain became severe and the Dirt didn't work when I applied it. Well, I shouldn't say it "didn't work," because it did, sort of. The pain near surface level immediately vanished, but the deeper pain continued unabated. Something else would have to be tried. The medications I had included Darvocet, Vicodin, and Valium. I took them at recommended dosages, not really expecting much relief (as I'd used them before, briefly, and didn't think they helped much) but I was willing to try again. In fact, this time they did work surprisingly well though not perfectly. Pain was controlled for as long as a couple of hours, which was better than nothing and allowed some sleep. We used ice packs on the affected hip (actually frozen vegetables wrapped in a towel) which was a real, if temporary, relief. Thanks to a recommendation, I tried a topical analgesic "StopPain" -- which at first seemed to make the hip pain much worse -- OW! -- but after fifteen minutes or so, the pain was literally gone, and the effect lasted for about another fifteen minutes. Hmm. Success, modest though it was. The Silk Pillow continued to support my hip so that there was lessened pressure on it and thus less pressure on the nerves that were being squeezed by the protruding disc. And that, in the end, seemed to do the trick. As the pressure was relieved, the pain lessened to the point that it was practically unnoticeable.

And then there was the cat, "Girl" she's named, who recognized right off I was in distress and she wanted to help. Cats are very sensitive that way. Unfortunately, she wanted to help by curling up tight on my right arm -- which strangely made the pain in my left hip and leg flare up. So I told her, "No." She didn't understand at first, and then it occurred to her that she could help by lying closer to the source of the pain, but not actually on me,which she did. By golly, it did seem to help, and she seemed so pleased and proud of herself to have aided my recovery. She liked the Silk Pillow, too.

And so, there's the story of sciatica and the Silk Pillow Effect.

We do what we can... ;-)


Saturday, September 21, 2013

Biopsy Update

Both of Ms Ché's biopsies came back negative. Yay! We are both so grateful at the results. Now to heal the probage and excisions. Yeek!

Tuesday, September 10, 2013

Biopsies

Ms. Ché had a biopsy on Monday and is scheduled for another one next Monday. It's unexpected and we're on tenterhooks until we get results -- whenever that will be.

My own sense is that it's just a precaution as there is no history of cancer in her family. But unfortunately these days you never know.

At any rate, the tests themselves require some lifestyle changes, and until we become acclimated to them, we'll be at a disadvantage regarding our other activities. She will be indisposed for a while, and I'll be looking after her as best I can.